“ You would never get way for
this kind of behavior with me. Your mother is too nice.”
I have heard my daughter
being told this too many times now and as a mother I’ve cringed inside every
single time and wanted to explain myself that I wasn’t spoiling her a bit. In
fact, I was really hard on her. But at all instances I kept silent knowing I
would never be able to explain our challenges and the other person would not
understand. I just distanced us from them as much as I could.
There have been too many occasions,
where my friends thought I was too uptight when I wanted to return home with my
daughter at a decent time from a get-together or wanted to stick to our regular
week day meal times on weekends knowing the aftermath I would have to face for
breaking schedule. Friends and family would walk over eggshells around my
daughter not knowing what’s going to spark an outburst from her. As a result,
they all somehow ended up treating her a bit differently than the other kids in
the room.
I’ve also always wondered if
these other parents judged me when I didn’t make too big of a deal if my
daughter wouldn’t smile, say hi, thank you or goodbye knowing the result of
putting her on the spot would be far worse than the current situation, if I
did. She, however, was constantly reminded that she does need to say those
things and be polite. But it wouldn’t happen right then and there, no matter
how hard I tried.
By the time my daughter was
three, I knew something was out of sync. I knew that, because I am not one of those
parents who will be blind to all my child’s antics. I had unfortunately been one of those
judgmental parents myself before I had my own kid. And I had promised myself
that my kid would never get away with most of the stuff I see other kids doing
or saying.
So when after years and years
of not giving in, being consistent with discipline, and not taking any crap, we
continued to have the same problems, I realized something was off. She seemed
to have been born with a switch that toggled between an extremely happy and an
extremely unhappy/mad kid with no middle ground. Sometimes the reasons were not
clear to us as parents, let alone other people we socialized with and our
family members who just thought she was spoilt.
A few years ago, I was
determined I was going wrong somewhere with this whole parenting gig. The world
around me sure made me feel that way. It was time I sought help. After my
counselor heard the challenges I was having, she advised I get my daughter
evaluated by an Occupational Therapist. To her, it seemed like my daughter had
some sensory issues. I had no idea what that meant at the time. So I started
reading.
The more I read, the more I
began to understand why getting dressed, brushing teeth, taking a shower, going
to school, riding in the car, socializing – almost everything with her was such
a challenge and a constant battle. Mostly all her senses, especially that of
touch and sound, are extremely heightened and they bother her to no extent. As
her therapist later had explained to me – imagine being pricked by a 1,000
needles all at once – that’s how she feels when she wears certain clothing. And
she cannot explain that to you and you have no way of understanding why she is
throwing such a tantrum. Not because she is spoilt – she wants to be in
something that comforts her.
Comfort and security is
something she seeks at all times. Kids with sensory issues are uncomfortable
most of the time. Being unable to express their discomfort, these kids tend to
become very insecure, irritable, frustrated, afraid and rigid. They need
extreme structure and operate well within a consistent schedule.
Doctors will not recognize
sensory integration as a medical problem and will not refer you for therapy.
Once a pediatrician told me – your daughter does not need any occupational
therapy. She’s just being a kid and you just need to stay consistent with
discipline. Some have told me I am overreacting and of course there were those
who will constantly harp on the fact that I spoil her and am responsible for all
ill actions. Lately, of course, there is the divorce and most all her reactions
are believed to be because of our “situation”.
I am done with crap people
throw at me constantly. I am done with those who are not there to help but can
only point fingers and be judgmental. I have a beautiful, extremely smart, creative
and loving daughter and all I want, is to provide her with skills and tools to
be able to grow up in to this wonderful human being in her own right. The past
six years have not been an easy ride of any sort – not for any one of us – but
this year is the year of hope and the year of building our futures – and build
we shall.
Why do I write about this you
ask? Knowing very well most people might start thinking my child has
a “problem” and be judgmental anyways? I write about this because I am a
changed person. I write about my experiences because I would like you to change
your thoughts as well – to have more patience, to understand, recognize, be
aware, love, and most importantly take an extra step whenever you get a chance, because, who I see here is a child who can sparkle up your life as much as she sparkles mine.
